https://www.nfresearch-childrens.org/news daily 0.75 2024-12-11 https://www.nfresearch-childrens.org/news/2024/12/11/predictive-modeling-for-nf1-mpnst-supported-by-nfri monthly 0.5 2024-12-11 https://www.nfresearch-childrens.org/news/2024/2/7/genomic-patterns-of-malignant-peripheral-nerve-sheath-tumor-mpnst-evolution-correlate-with-clinical-outcome-and-are-detectable-in-cell-free-dna-published monthly 0.5 2024-02-07 https://www.nfresearch-childrens.org/news/2020/10/28/gem-white-paper-published monthly 0.5 2020-10-28 https://www.nfresearch-childrens.org/news/2019/8/1/new-two-rfas-posted-to-nfri-website monthly 0.5 2019-08-01 https://www.nfresearch-childrens.org/news/2019/7/2/discoveries-stories-and-news-from-boston-childrens monthly 0.5 2019-07-02 https://www.nfresearch-childrens.org/news/2019/3/4/2019-patient-amp-caregiver-nf-symposium monthly 0.5 2026-03-20 https://www.nfresearch-childrens.org/news/2018/7/25/nicole-ullirch-channel7-news monthly 0.5 2018-07-25 https://www.nfresearch-childrens.org/news/2018/5/7/successful-gem-steering-committee-meeting-in-boston monthly 0.5 2018-05-07 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1525713556360-EQTAYX8PFFY4AT7SWOBA/image-asset.jpeg News & Updates - Successful GeM Steering Committee Meeting in Boston! https://www.nfresearch-childrens.org/news/2018/2/6/nf-family-symposium-at-massachusetts-general-hospital-on-march-24th monthly 0.5 2018-02-06 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1517940672056-GNFJAHZNTUPFF24RZEWC/NF+Symposium.PNG News & Updates - NF Family Symposium at Massachusetts General Hospital on March 24th! Register at NF-SYMPOSIUM.EVENTBRITE.COM https://www.nfresearch-childrens.org/news/2017/12/20/happy-holidays-from-the-nfri-team monthly 0.5 2017-12-20 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1513800124235-HBLX04OJOFEM1CKVNGA6/image-asset.png News & Updates - Happy Holidays from the NFRI Team! https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1513800158017-8CFM33000RUT59FCSC0G/2.png News & Updates - Happy Holidays from the NFRI Team! https://www.nfresearch-childrens.org/news/2017/11/9/nfri-scientific-advisory-committee-meeting-november-2nd-2017 monthly 0.5 2017-12-13 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1510247546569-LA63PL599MWZIFHFTUOD/SAC+and+David+11.2.17.png News & Updates - NFRI Scientific Advisory Committee Meeting https://www.nfresearch-childrens.org/news/2017/7/11/childrens-tumor-foundation-young-investigator-awards monthly 0.5 2017-11-21 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1511296420363-O183B87EUD0JELDIY95X/CTF_Logo_RGB_large.jpg News & Updates - Children's Tumor Foundation: Young Investigator Awards https://www.nfresearch-childrens.org/gem-consortium daily 0.75 2024-10-09 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/b28627d2-310d-4841-b39e-c885c50808e7/Web+capture_17-1-2024_132555_watermark.silverchair.com.jpeg GeM Consortium - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/f585f629-e081-41bf-b54f-e92b8af165b3/misc_slides_8_KPedits.pdf+-+Adobe+Acrobat+Pro+DC.jpg GeM Consortium - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nfresearch-childrens.org/grant-program daily 0.75 2018-10-04 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1532460243308-0HTTW4FJSKKSDBKIEK6P/KC.jpg NF Research Initiative https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1525961510784-W9WHJJQ0DY12SZBCIFRV/CL.jpg NF Research Initiative https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1532460260472-VHOK3N8TFO30GP6HII6I/DL.jpg NF Research Initiative https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1532460080692-1KTDKL3WZLSVVJHX1M4A/AHirbe.JPG NF Research Initiative https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1525961814159-QZ9B3TTUG8WOMYMXFX9T/DS.jpg NF Research Initiative https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1532460200340-KZ1F1CSGME8RLKQE9KMM/Yuan-Zhu.jpg NF Research Initiative https://www.nfresearch-childrens.org/home daily 1.0 2026-03-20 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1525195940127-S0YLLP8GMHWFYTKWSHH2/image-asset.jpeg Genomics of MPNST https://www.nfresearch-childrens.org/about daily 0.75 2026-03-20 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/a546c3bf-3654-44a0-a0d5-67a4606078bc/Miller_David_187-1248+-+resized.jpg Team https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/9e17990f-bec0-4020-a17b-995fa2c8b07b/GetAttachmentThumbnail.jpg Team - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nfresearch-childrens.org/sac daily 0.75 2018-06-28 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1493816883492-DDXGPH3222ZY0ZOQ8R6V/static1.squarespace.jpg NF Research Initiative https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1493817091874-0C64SKCY30F37M6O3HHH/image-asset.png NF Research Initiative https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1493817190851-OUEPV3870KBQY2H4PP3N/static1.squarespace.jpg NF Research Initiative https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1493817253382-WBM8JYFXQ1ZEG07O3QSJ/static1.squarespace.jpg NF Research Initiative https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509979307553-4UY2886ARZGW6TZS1TJG/151211-Trevor_Pugh2.png NF Research Initiative https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1527083112017-FDY85G0SHSY9LMRB4BYS/image-asset.jpeg NF Research Initiative https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1493817509525-ZREGQPHC9RBJKQTT7KUK/static1.squarespace.jpg NF Research Initiative https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1493817626329-CSO93HBUKLPDZWOJBQ28/static1.squarespace.jpg NF Research Initiative https://www.nfresearch-childrens.org/ctf-young-investigator-awards daily 0.75 2020-10-28 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1603913071288-A0XR45DG66ZXI5ZJQ13H/download.jpg CTF Young Investigator Awards https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1603913301667-IOMTK5UC8ZE1NOQ2P3EV/image-asset.jpeg CTF Young Investigator Awards https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542226912964-BB7W44C1BFJ96HXN9VUB/Grit_Jamie_255x187.jpg CTF Young Investigator Awards https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542226926623-DXPBBTWO2UHILD36TFJP/download.jpg CTF Young Investigator Awards https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542226957066-UQNCNQTIQDAXBKZXILVS/Brandon.jpg CTF Young Investigator Awards https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542226984916-3M5U1DP4VZY5AL5J5D2U/Lai+Man+%28Natalie%29+Wu.jpg CTF Young Investigator Awards https://www.nfresearch-childrens.org/steering-committee daily 0.75 2019-04-26 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509990043160-WNIS8WRGUOXR489FXH6B/Adrienne_Flanagan.jpg GeM Consortium https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509992187058-UNB3XNSL584JK0J1ZEYZ/headshot.jpg GeM Consortium https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509990264536-PQ4WIEPJDFMG3R3XJKU1/Hirbe-Angela-2.jpeg GeM Consortium https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542232938067-EMV1ODE08KNN1UPMH4AL/kevin-jones.jpg GeM Consortium https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509990432650-YWAATFC3IJG61PGIKIGK/jj.jpg GeM Consortium https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509990546417-LCQKWG2BG2UFRH9WQ6VJ/Raymond_Kim3.png GeM Consortium https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509990691280-W9GK6D49TR8X65M6VUPF/download+%281%29.jpg GeM Consortium https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509991297269-8LHDT6ZHJVGVI7PU5PR0/nishida+%281%29.jpg GeM Consortium https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509991807371-N07HZOHHM8DZJF2HHS0L/nicole_ullrich_sog_6938_11.jpg GeM Consortium https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509991883477-IWH7RYC4FBIHQCSJ90HG/XIa-Wang.png GeM Consortium https://www.nfresearch-childrens.org/more-resources daily 0.75 2020-04-23 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1504622395440-UVMRE3T0173FSBUFE16B/stethoscope.png Reference Articles https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1504622408416-UJ8MH0SUH7PDA744IW9H/dna+vector.png Reference Articles https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1504622435906-ESGWVEAF3XUWCNGW0TYL/microscope+vector.png Reference Articles https://www.nfresearch-childrens.org/working-group-members daily 0.75 2022-02-28 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542225233257-VTN3F71N27TX8MFKSSDX/Adrienne_Flanagan.jpg GeM Consortium Adrienne Flanagan, PhD Royal National Orthopaedic Hospital Co-chair https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509981886188-8W1COXI3WOJ4ZYUXWHWB/Angelia+Hirbe+-+Large.jpg GeM Consortium Angela Hirbe, MD, PhD Washington University School of Medicine in St. Louis Co-chair https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509980631220-TZRSF9MCYDO5XRV76QFO/AAEAAQAAAAAAAAu3AAAAJGZjMTQyMmIwLTFjMjctNGY1YS04NDc0LTJiMjk0MmMxM2QxYw.jpg GeM Consortium Alyaa Al-Ibraheemi, MD Boston Children's Hospital https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1506103526659-I0MBIHCY0HFQKFS7SBIU/Bui.jpg GeM Consortium Marilyn Bui, MD, PhD Moffitt Cancer Center https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509981760692-U38DG0FXFDM0B2VIKD0Z/Sonika_Dahiya2.jpg GeM Consortium Sonika Dahiya, MD, MBBS Washington University School of Medicine in St. Louis https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509981739492-5YCPB2PWYQZ95ESOFC3G/Brendan_C_Dickson_MD_MSc.png GeM Consortium Brendan Dickson, MD, MSc Mount Sinai Hospital, Toronto https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509981902362-W7J7WY7W1Z1A23BLZZ6Z/headshot.jpg GeM Consortium Jesse Hart, DO Lifespan Academic Medical Center https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1511373574488-BT55IB64R96RENP0C3HL/viskochil.jpg GeM Consortium Dave Viskochil, MD, PhD University of Utah https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509982011630-6V3KLIS8V3X7L860I7ME/Dr+Daniel+Lindsay+FRCPath.jpg GeM Consortium Daniel Lindsay, FRCPath Royal National Orthopaedic Hospital https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509981930630-F46OHQWAT6XFGIKP05TV/Screen+Shot+2017-09-22+at+2.30.12+PM.png GeM Consortium Yoshihiro Nishida, MD, PhD Nagoya University Graduate School of Medicine, JAPAN https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542228724997-PUBCHOGYAYA7N9N071LL/Piculell_Katherine-007.jpg GeM Consortium Katherine Piculell, MPH Boston Children’s Hospital https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542232716674-H3FQE86V9E0SSQQ3YCNZ/P5080833+%282%29.jpg GeM Consortium Anthony Griffin, MS Mount Sinai Hospital, Toronto https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509982117786-PKRVMZW8EXYE51QCFJEX/Nischalan-Pillay2.jpg GeM Consortium Nisclahan Pillay, PhD, FRCPath Royal National Orthopaedic Hospital Co-chair https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509982091144-ZVLA0QZYX65JNSFARLMF/9696313.jpg GeM Consortium David Miller, MD, PhD Boston Children's Hospital Co-chair https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509982151287-E6NRQXRGNJR3I267XR4H/Joshua-Schiffman1.png GeM Consortium Joshua Schiffman, MD Huntsman Cancer Institute https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509982169200-R4IODGOORGF26ZSJXGCC/2a96b6e.jpg GeM Consortium Diane Shao, MD, PhD Boston Children's Hospital https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509989573009-N3X3S30RF4MZ7Y3FYRSK/npatel26_photo_+%281%29.jpg GeM Consortium Nimesh Patel, MD Lifespan Academic Medical Center https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509989022673-5G307FZ5UUPT8B7U1CD7/DL-pic-to-send-out-when-requested-e1454393454913.jpg GeM Consortium David Largaespada, PhD University of Minnesota https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542228214147-TQ0IVRN7T3GUNUFJE0GS/pjp_portrait432x288.jpg GeM Consortium Peter Park, PhD Park Lab, Harvard Medical School https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542227984429-CTQQTK970ZWC1T186UGJ/p11_Shern-BBranson-4D5A0579jpg.jpg GeM Consortium Jack Shern, MD National Institute of Health https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1561994372462-Y4OPSXN2NJ680MTAY01G/Isidro.jpg GeM Consortium Isidro Cortes-Ciriano, PhD European Bioinformatics Institute (EMBL-EBI) https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542228343628-7IORR9JFED9NOSJRW2RF/matija-snuderl-square.jpg GeM Consortium Matija Snuderl, MD NYU Langone Health https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542227903061-57XY011CVD257F7LZIGB/Brandon.jpg GeM Consortium Kyle Williams, PhD University of Minnesota https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542227817770-0YCE8V25HR5AIIHLRI24/Steward_Douglas_2015_ORIG_1x1WEB.__v10021787+%281%29.jpg GeM Consortium Douglas Stewart, MD National Cancer Institute https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542230279330-HOW9IQ6CNORJ996GU8U9/132913_web.jpg GeM Consortium Ludmil Alexandrov, PhD University of California San Diego https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1542232584008-3HY6AZKKAJYDL861QODS/image-asset.jpeg GeM Consortium George Charames, PhD Mount Sinai Hospital, Toronto https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509982269339-GA54ZUIG7J50W3QEBX3G/nicole_ullrich_sog_6938_11.jpg GeM Consortium Nicole Ullrich, MD, PhD Boston Children's Hospital Co-chair https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509982219542-6YXZKB5U8SSRQ3ACE6D3/AAEAAQAAAAAAAAhjAAAAJGFkMzllZDBkLWFjNTYtNDgwMS1iMThiLThlZGJkMDk1YmU1Yg.jpg GeM Consortium Justin Jordan, MD Massachusetts General Hospital https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509982324802-WWC8EMT671QE1MOE21XR/XIa-Wang.png GeM Consortium Xia Wang, MD, PhD Moffitt Cancer Center https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1509988263223-HAB2WY7CMLRBQYAXEHTC/Raymond+Kim.png GeM Consortium Raymond Kim, MD, PhD University of Toronto, Sinai Health System, University Health Network, Toronto https://www.nfresearch-childrens.org/meeting-agendas daily 0.75 2017-10-18 https://www.nfresearch-childrens.org/meeting-minutes daily 0.75 2018-03-22 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1521746709989-YVRXMAJKL9J7RZ5TFJKL/meeting-agendas-and-minutes-icon.png GeM Consortium https://www.nfresearch-childrens.org/supporting-materials daily 0.75 2017-12-18 https://www.nfresearch-childrens.org/faqs daily 0.75 2017-10-20 https://www.nfresearch-childrens.org/oncology-and-pathology daily 0.75 2019-07-01 https://www.nfresearch-childrens.org/genomics-and-informatics-working-group-meeting-minutes daily 0.75 2019-07-01 https://www.nfresearch-childrens.org/data-use-and-publications-working-group-meeting-minutes daily 0.75 2019-07-01 https://www.nfresearch-childrens.org/contact-us daily 0.75 2024-01-18 https://www.nfresearch-childrens.org/progress-report-submission daily 0.75 2018-07-24 https://www.nfresearch-childrens.org/gempathology daily 0.75 2020-04-23 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1552247598782-KRMIQSY02NTLUBKDP77B/Step+2.png GeM Pathology - Fresh Frozen MPNST https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1552247908787-LTP4OUD1NJ78ZRT7GYXC/images.jpeg GeM Pathology - FFPE MPNST https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1552251439501-O2S8MYYXKG36A04PTRQU/Spinal_cord_histology_08.jpg GeM Pathology - Normal Specimen https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1552251514706-ER7S9PRMQFI7788H2OG9/Unknown.jpeg GeM Pathology - Digital Pathology Platform https://www.nfresearch-childrens.org/publications daily 0.75 2026-03-20 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1587676046357-MTFWP0DS7PTP4TS1AZS9/GeM+Consortium-logo_color.png Publications and Presentations https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1562078595709-XT9STW8DIFN7QIZJ6B5V/NFResearchInitiative_BCH_Logo.png Publications and Presentations https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1561996757188-K3NUV2A82SDYR3CARE49/download.png Publications and Presentations https://www.nfresearch-childrens.org/fellowshipreviewform daily 0.75 2019-09-23 https://www.nfresearch-childrens.org/grantreviewform2019 daily 0.75 2019-09-30 https://www.nfresearch-childrens.org/clinical-data daily 0.75 2020-04-23 https://images.squarespace-cdn.com/content/v1/58bd88772e69cfbfda75a1cc/1587669980121-8OKTP14QNGXZPJFDMB5Y/download.png Clinical Data The Multi-Institutional Registry for Malignant Peripheral Nerve Sheath Tumors is a REDCap database and is serving as the clinical data repository for the GeM Consortium. https://www.nfresearch-childrens.org/src daily 0.75 2020-12-04 https://www.nfresearch-childrens.org/submitted daily 0.75 2020-10-28 https://www.nfresearch-childrens.org/mpnst-liquid-biopsy daily 0.75 2022-05-04