The Neurofibromatosis Type 1 Tumor Early Detection (NF1-TED) trial will study whether a blood test can detect malignant peripheral nerve sheath tumors (MPNSTs) in participants with NF1 earlier than the current standard of care.
If interested, email NF1-TED@childrens.harvard.edu
Eligibility Criteria
18 years or older
Diagnosis of Neurofibromatosis Type 1 (NF1)
History of plexiform neurofibroma (PN)
Participant Responsibilities
At the beginning of the study, and every six months during the five-year follow-up period, participants will be asked to provide a blood sample and complete a brief online questionnaire.
If a participant develops an MPNST, the study team will request additional clinical data and a sample from the MPNST collected during regular clinical care from your doctor.
Why Participate?
There will be the opportunity to earn up to $425.00 over the five-year follow-up period. You will also be participating in a study that could help improve the lives of people with NF1 in the future.