NF Research Initiative

News & Updates

2019 Patient & Caregiver NF Symposium on March 30th

The Boston Children's Hospital Multidisciplinary Neurofibromatosis Program, in collaboration with Massachusetts General Hospital, invites you to the 2019 Patient & Caregiver NF Symposium on March 30. Learn about the latest research and clinical trials, connect with other families and ask questions. The agenda will include:

 Updates on medications to help shrink tumors in NF

 How animal models help with drug discovery

 Preimplantation genetic testing & family planning

 Highlights from Neurofibromatosis Northeast & Children's Tumor Foundation

 Gene therapy initiatives in NF2

 Growth and puberty in NF1

 "Ask the Experts" session

Register at:

Parking and lunch are included with the registration fee. Please park in the Boston Children's Hospital Patient Family Parking Garage at 2 Blackfan Circle.

If the cost of registration is prohibitive please contact Caroline McGowan at Financial assistance is available.